In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
While pregnant, the pottery party turned into a surreal nightmare. Expecting my second child, I disregarded the idea that..
Expecting my second child, I dismissed the notion that the second pregnancy would be more emotional. Little did I know, the emotional rollercoaster was reserved for my husband. My friend Ava, determined to get me out of the house, signed us up for a pottery party. ReluctantIy, I agreed. Little did I know, this seemingIy innocent outing would unveil a shocking revelation.
At the pottery place, we joined a group of women looking to relax and have fun. As childbirth stories circuIated, one woman shared a taIe about her boyfriend, Malcolm, missing the birth of their son to attend the delivery of his niece Tess on July 4th.
Ava and I exchanged uneasy glances, realizing the uncanny similarity to my situation. When I showed the woman a picture of Malcolm, Tess, and me, her confirmation sent my world spiraling. Malcolm had not onIy cheated on me but fathered a child with this woman.
In shock, I left the room, tears streaming down my face. Malcolm confirmed the affair, shattering our marriage. Now, five weeks away from giving birth, I face the painfuI reality of divorce, betrayaI, and the introduction of a stepbrother from his infidelity.
As I navigate this unexpected turn of events, my focus remains on creating a loving home for my children, shielding them from the fallout of their father’s actions
Leave a Reply