Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
People were speechless when they saw what emerged from the sea
A profound sense of astonishment gripped onlookers as an extraordinary sight emerged from the depths of the sea along the Romanian coast. The tranquil waters revealed a wounded dolphin, its plight capturing the attention of unsuspecting tourists.
Efforts were made to rescue the distressed marine mammal, but regrettably, its fate was sealed. Experts identified the creature as a member of the Delphinus Delphis species, a species known to inhabit the Black Sea.
Upon closer examination, the dolphin displayed multiple wounds on its body, likely inflicted by the ensnaring nets of fishermen. The Black Sea is home to three distinct species of marine mammals: the Common dolphin (Delphinus delphis ponticus), the Bottlenose dolphin (Tursiops truncatus ponticus), and the Harbor porpoise (Phocoena phocoena relicta).
Diverging in morpho-anatomical features and primary food sources, these species exhibit unique characteristics. The Bottlenose dolphin and Harbor porpoise primarily feed on fish and benthic organisms, while the Common dolphin’s diet encompasses fish and other organisms found within the water column.
Each species displays a preference for specific habitats, with the first two favoring coastal areas and the Common dolphin being commonly encountered in offshore zones. The Common dolphin is characterized by a bluish-gray to brown color on its dorsal side, featuring a distinct V-shaped lateral boundary that is remarkably light. A pigmented band, varying in darkness, connects the lower jaw to the insertion of the pectoral fins. The dorsal, pectoral, and caudal fins range from black to gray-brown.
Newborns measure around 0.80-0.95 m, with adults in the Black Sea not exceeding 2 m (males – 177 cm, females – 159 cm). Highly sensitive to chemical and acoustic pollution, they exhibit social behaviors, forming groups of 10-15 individuals, as well as pairs or isolated individuals. With rapid swimming capabilities, reaching speeds of approximately 50 km/h, they engage in short-duration dives and frequent surface breathing at intervals of 1/3 seconds. Their habitat extends to depths of up to 70 meters.
Sexual maturity is reached at the age of 2 years, and the gestation period is 10 months, with weaning occurring at 4 months. Displaying highly developed maternal instincts, their lifespan is estimated to be 25-30 years. Their primary diet comprises small pelagic fish such as sprat, anchovy, and gobies, along with crustaceans.
Additionally, their stomachs often contain other species like horse mackerel, cod, bluefish, red mullet, sea bass, shrimp, and mollusks. The daily food intake for these remarkable creatures is approximately 10 kg.
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