Virginia and Catalina are two albino girls from Argentina who became viral on social media when they were born four years ago.
In 2018 Jorge Gomez and his wife received the good news that they were going to become parents to two twin baby girls. The couple already had a son and became ecstatic when the doctors told them they were expecting twin girls.
According to Gomez, the pregnancy was completely normal, and his wife used to visit her doctor regularly.
“When they gave us the news that we would have two babies, it gave us a lot of happiness, and when they were born, and we saw that they were albinos that happiness did not change at all. For us it is a blessing,” he told a local news outlet.
The father-of-three said that there were no complications and everything went smoothly. However, in the 36th week, doctors told him that they had to deliver the babies immediately.
So, the girls were born prematurely in the 36th week. But they were healthy and weighed normal. Catalina was born two minutes earlier than Virginia. They both weighed 5.95 lbs and 5.5 lbs, respectively.
The unusual thing about the newborn girls was their milky white hair. Gomez and his wife didn’t see any kid like that before in their lives, nor did anyone else.
So, the girls became an overnight sensation in Argentina in 2018 and made headlines in many media outlets and newspapers.
The pictures of them went all over the internet, and people were amazed to see two small girls born with snow-white hair.
According to LV12, the twins were born with a rare genetic disorder, albinism in which there is a lack of pigmentation in the skin.
People with albinism do not have enough melanin pigment in their skin and are born with either white or blonde hair. This condition also affects their coloring and eyesight. Some babies even have ginger hair, depending on the amount of melanin in their skin.
Catalina and Virginia were the first-ever kids born with albinism in Argentina. Their rare condition made them popular in the country.
“When they gave us the news that we would have two babies, it gave us a lot of happiness, and when they were born, and we saw that they were albinos, that happiness did not change at all,” Jorge Gomez told LV12.
He said he felt super blessed to be their father and never once thought that they were different from other kids or something was wrong with them.
“There were some precautions that we as parents had to bear in mind. For example, the girls are extremely sensitive to UV rays, which affect their skin and can cause sunburn and even cancer in a worst-case scenario,” said Gomez.
“So, we have to be extra cautious all the time and make sure that they are not going in the sunlight and are well protected from extreme weather conditions, especially hot weather.”
The twins are now four years old and look even more beautiful as they are growing up.
A baby girl who ‘never stops smiling’ is living with a rare skin condition that makes her skin crack
Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
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