The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
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Terry Crews’ wife says their marriage almost ended three times.
Terry Crews’ wife, Rebecca, shared that their marriage almost ended in divorce three times, but they worked through their issues after Terry decided to focus on “working on himself.”
In an interview with DailyMail.com, Rebecca, who’s been married to Terry for 35 years, spoke about how much she admires his determination but also revealed they’ve had tough times, even coming close to being homeless.
She explained that their shared faith has been important in their relationship. Even when things were difficult, they both kept trying, believing that they chose each other for a reason. Rebecca said they’ve had a few moments where they could have ended their marriage, but each time, one of them wanted to stay and worked hard to make things better.
Rebecca Crews, mother of five and the founder of a new boutique in Pasadena, shared more about her relationship with her husband, Terry. She explained that their marriage almost ended three times. The first time, she wanted out, but Terry fought to keep them together. The second time, he wanted to leave, but she fought for him. The third time, Terry had to face his addiction, and Rebecca kicked him out.
Terry begged her to stay, but Rebecca told him he’d messed up. He went to work on himself, became a better person, but Rebecca said he could still improve.
Both Terry and Rebecca have been open about their struggles, and in 2021, Terry admitted that his porn addiction nearly ruined their marriage.
When asked what makes a marriage last, Rebecca said it’s important to make sure both people are getting what they want. She knew what she wanted when she married Terry, and it turned out they shared similar goals. She warned that couples who don’t share the same dreams, like wanting children, can face big problems.
Rebecca added that even though it’s been tough, she always saw Terry as a good guy and her friend, and that helped them get through the hard times.
Rebecca Crews shared that she loved Terry as a person before she fell in love with him, and he’s still her friend. She joked that she can sometimes argue with him and then hug him right after, saying, “but you’re still my boo.”
Rebecca explained that while she holds Terry to a certain “standard,” forgiveness is important in making their relationship work. She said she often tells him, “You can do better,” and that he admits he’s not perfect. She believes forgiveness is key to staying married, but it has to be sincere. She added that you can’t just keep accepting bad behavior; sometimes you need to step back and let someone feel the consequences.
The couple, who have four daughters and a son, have been through tough times but live in Pasadena, California, and have been together for 25 years.
Rebecca Crews shared that there was a time in their lives when they were close to being homeless. They were just a week away from having to leave their place with nowhere to go when something came through for them at the last moment. They ended up moving just across the street in Burbank.
Now that all of their children have grown up and moved out, Rebecca said she and Terry have more freedom. They travel more and she can even join him while he’s working, making the empty-nester life fun. She joked that Terry can sometimes feel like another child!
With more time on her hands, Rebecca has been focusing on her clothing line. She’s grateful for the support from Terry, both financially and emotionally, and she credits him for helping her build her determination. Rebecca said it’s never too late to follow your dreams, and she now feels bolder and more confident. She even got emotional when her new store in Pasadena was opening, calling it a dream come true and seeing even bigger things ahead.
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