Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
\
Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
Howie Mandel opens up on his condition
On “The Kelly Clarkson Show,” Mandel discussed his struggles with mental illness. He confessed that his celebrity status had a negative impact on his mental health, not a positive one.
From the outside, he sometimes seems cheerful, but when he’s at home, especially alone, he stated that’s not the case.
When Kelly Clarkson heard this, she was shocked. Mandel then acknowledged, “I’m heavily medicated.” Clarkson found it hard to comprehend that someone would make derogatory remarks about her.
Since he was a young child, Howard Stern has battled anxiety and OCD. He has said that he has had these ailments for almost his entire life.
Because he didn’t have any classmates to make friends with when he was younger, he was labeled “strange.” Though he believes he gets paid to be strange, he now finds that every day is a struggle. America’s Got Talent has Stern on the panel as a judge.
Mandel claims to be experiencing a nightmare and tries to ground himself. He has a lovely family and enjoys his work, yet he can also experience deep sadness from which he cannot recover.
He shared a lot of worry during the COVID-19 epidemic because he always has the thought, “We could die,” running through his head. But the fact that everyone in his immediate vicinity was okay would comfort him. But the world as a whole was in horrible shape [during the pandemic].
Up until 2006, Mandel kept his illnesses a secret from the public. He was ashamed and concerned that if his instability were discovered, he wouldn’t be able to obtain employment.
Mandel’s initial concern was that he had let his family down, but he later understood that if it was discovered that he wasn’t stable, he might not be employed.
Howie Mandel, the comedian, has struggled with severe depression for a long time. Mandel acknowledges that, even though he still experiences dark and terrible periods, the general public may not fully understand the severity of his depression.
Like other comedians, he utilizes comedy to deal with his disability. He claims that comedy saved him, and he feels most at ease performing.
Mandel claimed that he is now coming forth about his struggles with mental illness because he wants to end the stigma.
He is aware that enduring all of this will not be simple, but he has faith that despite his difficulties, he will continue to treasure the times when his life is not shadowed by darkness.
Mandel is aware that some people find his battles with mental illness amusing, but that doesn’t mean they aren’t terrible for him.
Despite his obstacles, he is optimistic that he can end the stigma associated with mental health issues. It won’t be simple for him to keep his mental health, but he wants to.
Leave a Reply