Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
Sharon Osbourne says ‘we all let you down’ as she asks major question to industry after Liam Payne’s death
Sharon Osbourne said her’ heart pangs’ following Liam Payne’s death
Sharon Osbourne thinks the music assiduity’ let you down’ in her heartbreaking homage to Liam Payne.
Payne, 31, was set up dead after falling from a third bottom deck of the Casa Sur Hotel in Buenos Aires, Argentina, on Wednesday( 16 October).
A posthumous examination report showed that the songster failed of multiple traumas and’ internal and external haemorrhage’.
Former The X Factor judge Osbourne made a guest appearance in 2010 to help Louis Walsh at the judges’ houses phase of the competition.
That same time, Payne rose to fame on the show, alongside Harry Styles, Niall Horan, Zayn Malik and Louis Tomlinson, when One Direction was formed.
In a homage participated on Instagram, Osbourne wrote” Liam, my heart pangs. We all let you down.”
Questioning the music assiduity, she added” Where was this assiduity when you demanded them?
” You were just a sprat when you entered one of the toughest diligence in the world.
” Who was in your corner? Rest in peace my friend.”
Previous to the songster’s death on Wednesday, police participated a paraphrase of calls made by hostel staff asking for backing for a guest who was’ intoxicated by medicines and alcohol’.
In a statement, police said Payne’s hostel room had been’ in complete disarray’ with’ colorful particulars broken’.
Argentina’s National Criminal and Correctional Prosecutor’s Office are pertaining to the incident as an’ inconclusive death’.
Last night,( 17 October) Louis, Zayn, Niall and Harry, put out a common statement following their former bandmates death.
” We are fully devastated by the news of Liam’s end,” it read.
” In time, and when everyone is suitable to, there will be further to say. But for now, we will take some time to suffer and reuse the loss of our family, who we loved dearly.
” The recollections we participated with him will be treasured ever.
” For now, our studies are with his family, his musketeers, and the suckers who loved him alongside us.
” We’ll miss him terribly. We love you Liam.”
Former The X Factor co-star Rebecca Ferguson has since admitted that she’s been bothered about Payne for a while.
The songster- tunesmith, who also appeared on the gift show in 2010, said on a live X Space “ I transferred a communication to some of the suckers and I said ‘ I’m really upset about Liam, how do I get in touch with him?’ and no- bone knew how.
“ But I’ve been bothered about him for a while because I could see that he was n’t in a good place, and I allowed he might have been touched off by a lot of the stuff that has been in the news then recently as well. ”
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