Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
Think you know her? You might want to take a seat before discovering who she really is
Joan van Ark was born on June 16, 1943, in New York City, far from the world of entertainment. Her life took a significant turn during her teenage years while acting in Denver, where she met actress Julie Harris, who would greatly influence her career. Julie encouraged Joan to apply to the prestigious Yale Drama School and even helped her secure a scholarship, making Joan the second woman ever to enroll there.
Joan recalled: “Harris wrote to the dean and asked him to meet me. Long story short, my parents drove me to New Haven, Connecticut, where the dean awarded me a scholarship. It felt destined”. After honing her skills in theater, Joan shifted her focus to television, where she starred in shows like Temperature’s Rising, Spider-Woman, Days of Our Lives, and even made a guest appearance on Bonanza. However, it was her role as Valene Ewing on Dallas in 1978 that propelled her to stardom.
Her success on Dallas led to her starring in its spin-off, Knots Landing, which was actually developed before Dallas. Initially, Joan was set to join the Knots Landing cast, but she ended up reprising her role on Dallas first. It was her husband, newscaster John Marshall, who encouraged her to accept the role despite her busy schedule. When it was announced that Julie Harris would play Val’s mother, Joan was thrilled. “I couldn’t believe they had picked her to be my mother”, she recalled in a 1984 interview.
After 13 seasons and 327 episodes on Knots Landing, Joan left the show just before its final season. While many speculated that her departure contributed to the show’s cancellation, she was ready for new challenges. “I loved my time on that show”, she stated, expressing gratitude to the show’s creator, David Jacobs, and her co-star, Ted Shackelford, who she considered family.
Joan and John, who met in high school, have been happily married for over 58 years and share a daughter, Vanessa Marshall, who works in the entertainment industry. Now at 81, Joan has a net worth of $10 million and remains stunning. She was last spotted five years ago, casually paying for parking in workout attire.
Her most recent appearance was in the 2017 television film Psycho Wedding Crasher. After a remarkable 50-year career in entertainment, Joan van Ark is now a life member of The Actor’s Studio, solidifying her legacy as an icon.
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