Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
Anne Hegerty, 66, from The Chase, shared her worries about dating. She talked about how her longest relationship only lasted four months and that she has never had children.
Anne Hegerty, known from The Chase, shared that her biggest fear about dating is having a man invade her personal space.
The quizzer, who was diagnosed with autism at 45, opened up about her challenges, mentioning a time when she unplugged her phone to stop a boyfriend from contacting her.
At The Paul Strank Roofing Charity Gala in Kensington, London, she honestly said that she thinks she would make a terrible partner.
Anne, 66, said, “I really struggle with being close to others and having anyone else in the house.
“I think a lot of autistic people don’t get married or settle down.”
Anne explained, “I don’t even have pets because of this, and my ability to live with other people is getting smaller. I need a lot of alone time.
“I always feel like I need more space than anyone can give me. If I wanted a relationship, I could find one, but honestly, I don’t.”
She also mentioned that her longest relationship only lasted four months. Reflecting on that time, she said, “It only worked for those few months because I was in Manchester. I kind of set it up so it wouldn’t last.”
In the end, she wrote to him to end things. “I remember crying with relief and then crying with guilt,” she shared.
Anne felt overwhelmed during that relationship. “Sometimes, I unplugged the phone because he tried to call me every day. I just wanted it to be over.
“I’d sit there waiting for the phone to ring, thinking, ‘Don’t phone, don’t phone, don’t phone!’ Other times, to get over the waiting, I’d call him, but that made him think I wanted to talk. I really just wanted to end it. I didn’t want to talk to him or anyone!”
Anne joked that she hasn’t lacked offers from admirers who seem to like her “Mrs. Trunchbull” Governess outfit.
She said, “I’m sure some people are attracted to the whole look of The Governess. I think there are some who might be interested if they let me.”
Anne said, “I do meet attractive men, but I know it won’t work out. I feel like it’s not fair to them because I won’t treat them well.”
She added, “I always want more space than they can give me. If I wanted a relationship, I could find someone, but I don’t.”
She thinks it’s better not to date at all and enjoys having men as friends more than women. She recalled a quiz she attended in June, where a woman pointed out they were the only two women in the room, but Anne hadn’t even noticed because she was talking to her male friends.
Anne also shared that this is part of why she never had children, even though she is great with kids. “I did want children, but I knew I wouldn’t be able to handle it very well.”
About 20 years ago, two kids from her neighborhood used to come over. “We limited their visits to just one hour a day, but they always wanted to stay longer. They were wonderful kids, and we’re now friends on Facebook, but I couldn’t handle that for more than an hour.”
Anne takes her role as godmother to Mark “Beast” Labbett’s eight-year-old son, Lawrence, very seriously.
She said, “Lawrence’s birthday is at the end of November, so I usually send a birthday and Christmas present at the same time—but they are not the same gift. My parents had winter birthdays, and I knew they hated getting just one present for two celebrations.”
Anne joked that one of the gifts she gave Lawrence was a bit inappropriate—a toy crossbow. “So, weaponry,” she laughed. “But lately, I’ve been giving him Minecraft vouchers since he really loves that.”
She also mentioned that she has spent Christmas alone for the past 40 years. That’s why she’s especially happy to be playing the Fairy Godmother in this year’s panto, Cinderella, in Scarborough.
Anne, who was on I’m A Celebrity… Get Me Out Of Here in 2018, said, “Now that I’m in panto, I can say, ‘Sorry, I’m in Scarborough!’ and that’s my only day off.”
She sees it as a great day off. Even though many people invite her to spend Christmas with them, she prefers not to. “I don’t do Christmas dinner or a tree. When I was a kid, I just remember all the pine needles everywhere!”
Earlier this year, Anne took on another acting role, making a cameo as a neighbor in a film called Exorcising Barry, which is about a man obsessed with a demon.
Anne said that any chance of going to Hollywood is out of the question.
She explained, “America wouldn’t want me because I’m fat. I have a friend who went there for work, and even though she looks amazing, they told her she needed to lose weight. I’m fine with how I am, but they don’t like fat British actresses.”
Despite this, she has had great success in Britain. Talking about The Chase’s recent National Television Award win, she said, “I’m so happy. Bradley Walsh is amazing. It’s been 14 years, and I love it.”
She added, “Other kids used to sing in front of the mirror with a hairbrush. When I was younger, I practiced being interviewed for when I became famous. I don’t know why, but it’s always been my dream.”
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