The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
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Football Players ‘Deliberately Put Peanuts In Severely Allergic Teammate’s Locker’ In Heartbreaking Incident
After they “deliberately put peanuts into an allergic teammate’s locker,” adolescent football players have come under scrutiny.
At the age of nine months, Carter Mannon’s allergy to peanuts was identified.
He’s managed to lead a regular life and even join the Lake Travis High School varsity football team in Texas by being cautious.
But according to Mannon’s mother, his friends stocked his locker with potentially fatal amounts of peanuts after learning about his allergy.
Shawna Mannon tells People that she remembers the exact moment her son’s allergy became apparent: “My husband was making a peanut butter sandwich right next to him while he was sitting on the counter.” Carter accidentally smeared peanut butter over himself when he reached inside the container.
He immediately developed hives; they were just like his handprint. At that point, we understood, “Oh, he must be allergic.”
His severe allergy was well-recorded at his school.
He had actually had the same symptoms on a previous event when he inadvertently consumed a tainted cookie, necessitating two EpiPen doses and a hospital visit.
Anaphylaxis is a severe, perhaps fatal allergic reaction, according to the Mayo Clinic. The immune system unleashes a barrage of chemicals during anaphylaxis, which may send the body into shock. Breathing becomes difficult due to a quick drop in blood pressure and narrowing of the airways. You can develop a skin rash and a rapid, weak pulse. Additionally, you can feel queasy and throw up.The immediate treatment for anaphylaxis is an injection of epinephrine. It may be lethal if treatment is delayed.
Mannon experienced another frightening event following this shock, and according to his mother, it wasn’t an accident this time.
She claims that Mannon’s comrades chose to pull a potentially fatal “prank” on their fellow member who suffers from severe allergies.
Shawna clarifies: “They were teasing each other a little bit and asked, ‘But could it kill you if it touched you?’” “Yeah, it absolutely could,” he responds. It would cause anaphylactic shock if it got in his mouth, eyes, or nose. He then admitted to them that “yes, it could definitely kill me.”When they returned the following day, just before the game, they found peanuts in his cleats, on his jersey, and in his locker.
“They just kind of scattered a can of peanuts throughout his locker and put it in his cleats,” the source said.
Mannon reacted quickly and severely, breaking out in hives on his arm.
After the event was reported, the males implicated were made to swap locker rooms, bench for two days, and complete extra runs during practice.
Shawna, though, asserts that Mannon received criticism for this.
“The kid would flick him as he’s walking down the hall from behind,” the accuser says. There was a great deal of verbal abuse. Someone once placed a peanut butter granola bar in his backpack while he was in the locker room.
Shawna reported the claimed incident to the school board, but it was determined that it was not bullying.
“Bullying is a very specific behavior under the Texas Education Code, defined as an act or pattern of acts that physically harms a student or materially and substantially disrupts the educational process,” a spokeswoman of the Lake Travis Independent School District tells People. After our study was finished, we concluded that bullying did not meet the legal requirements.
Due to the abuse, Carter has since transferred schools; Shawna said she felt the school was “no longer a safe place for him.”
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