The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
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Wisconsin Dairy Queen Puts Up ‘Politically Incorrect’ Sign, Owner Stands By His Decision
A message left on the front window of a Dairy Queen restaurant in Kewaskum, Wisconsin, garnered attention and is currently making waves on the internet. The billboard prominently displays the restaurant’s political incorrectness and calls attention to the fact that it often employs holiday greetings like “Merry Christmas,” “Happy Easter,” and “God Bless America.” Additionally, it shows support for the
They receive complimentary sundaes, the US flag, and expressions of gratitude for their military service on Veterans Day.
In defense of the placard, restaurant owner Kevin Scheunemann stated that it was put up nearly four years ago to be transparent about his and the staff’s dedication to serving God and the nation. According to Scheunemann, he put up the sign in response to a customer’s grievance against Christian music being played in the restaurant. Since then, the sign hasn’t caused any further issues.
The sign has gained more attention recently when an Oregonian tourist posted a picture of it on Facebook and expressed concerns about the message’s alleged exclusivity. The original post attracted a lot of attention before it was taken down.
While some people support the message on the sign, others have taken offense at the person who shared the image and voiced their opinions. However, Scheunemann’s choice to put the sign is supported by local business owners, who say that customers are free to leave the restaurant if they disagree with its principles.
The people living in the little village of Kewaskum seem to read the sign as the owner’s statement of beliefs and take it at face value. According to Dairy Queen’s official statement, Scheunemann’s approach is not endorsed by the company, and the sign only conveys the proprietor’s beliefs. The company stated that all franchisees and staff members are required to treat customers with respect and decency, regardless of their religious beliefs.
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