Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
My Husband Refused to Buy a New Washing Machine and Told Me to Wash Everything by Hand — Because He Promised His Mom a Vacation Instead
Six months postpartum, drowning in baby laundry, and exhausted beyond words, I thought my husband would understand when our washing machine broke. But instead of helping, he shrugged and said, “Just wash everything by hand—people did it for centuries.”
I never thought I’d spend this much time doing laundry.
A tired woman in a chair | Source: Pexels
Six months ago, I gave birth to our first baby. Since then, my life had turned into a never-ending cycle of feeding, changing diapers, cleaning, cooking, and washing. So much washing. Babies go through more clothes in a day than an entire football team.
On a good day, I washed at least eight pounds of tiny onesies, burp cloths, blankets, and bibs. On a bad day? Let’s just say I stopped counting.
A woman doing laundry | Source: Pexels
So when the washing machine broke, I knew I was in trouble.
I had just pulled out a soaking pile of clothes when it sputtered, let out a sad grinding noise, and died. I pressed the buttons. Nothing. I unplugged it, plugged it back in. Nothing.
My heart sank.
When Billy got home from work, I wasted no time.
A tired puzzled woman | Source: Pexels
“The washing machine is dead,” I said as soon as he stepped through the door. “We need a new one.”
Billy barely looked up from his phone. “Huh?”
“I said the washing machine broke. We need to replace it. Soon.”
He nodded absently, kicked off his shoes, and scrolled through his screen. “Yeah. Not this month.”
A man on his phone in his living room | Source: Pexels
I blinked. “What?”
“Not this month,” he repeated. “Maybe next month when I get my salary. Three weeks.”
I felt my stomach twist. “Billy, I can’t go three weeks without a washing machine. The baby’s clothes need to be cleaned properly every day.”
A couple having a serious talk | Source: Pexels
Billy sighed like I was asking for something unreasonable. He put his phone down and stretched his arms over his head. “Look, I already promised to pay for my mom’s vacation this month. She really deserves it.”
I stared at him. “Your mom’s vacation?”
“Yeah. She’s been babysitting for us. I thought it’d be nice to do something for her.”
Babysitting?
A shocked woman | Source: Pexels
I swallowed hard. His mother came over once a month. She sat on the couch, watched TV, ate the dinner I cooked, and took a nap while the baby slept. That wasn’t babysitting. That was visiting.
Billy kept talking like he hadn’t just dropped a bomb on me. “She said she needed a break, so I figured I’d cover her trip. It’s just for a few days.”
A man talking to his wife in his kitchen | Source: Pexels
I crossed my arms. “Billy, your mom doesn’t babysit. She comes over, eats, naps, and goes home.”
He frowned. “That’s not true.”
“Oh, really? When was the last time she changed a diaper?”
Billy opened his mouth, then shut it. “That’s not the point.”
I let out a sharp laugh. “Oh, I think it is.”
A couple arguing in their kitchen | Source: Pexels
He groaned, rubbing his face. “Look, can’t you just wash everything by hand for now? People used to do that for centuries. Nobody died from it.”
I stared at him, feeling my blood boil. Wash everything by hand. Like I wasn’t already drowning in work, exhausted, aching, and running on three hours of sleep a night.
An angry woman clutching her head | Source: Pexels
I took a slow, deep breath, my hands clenching into fists. I wanted to yell, to scream, to make him understand how unfair this was. But I knew Billy. Arguing wouldn’t change his mind.
I exhaled and looked at the pile of dirty clothes stacked by the door. Fine. If he wanted me to wash everything by hand, then that’s exactly what I’d do.
The first load wasn’t so bad.
A pile of clothes | Source: Pexels
I filled the bathtub with soapy water, dropped in the baby’s clothes, and started scrubbing. My arms ached, but I told myself it was temporary. Just a few weeks.
By the third load, my back was screaming. My fingers were raw. And I still had towels, bedsheets, and Billy’s work clothes waiting for me.
A tired woman sitting near a bathtub | Source: Midjourney
Every day was the same. Wake up, feed the baby, clean, cook, do laundry by hand, wring it out, hang it up. By the time I was done, my hands were swollen, my shoulders stiff, and my body exhausted.
Billy didn’t notice.
A bored man on a couch | Source: Pexels
He came home, kicked off his shoes, ate the dinner I cooked, and stretched out on the couch. I could barely hold a spoon, but he never once asked if I needed help. Never looked at my hands, red and cracked from hours of scrubbing.
One night, after I’d finished washing another pile of clothes, I collapsed onto the couch next to him. I winced as I rubbed my aching fingers.
Billy glanced at me. “What’s wrong with you?”
A tired woman on her couch | Source: Pexels
I stared at him. “What’s wrong with me?”
He shrugged. “You look tired.”
I let out a bitter laugh. “Gee, I wonder why.”
He didn’t even flinch. Just turned back to the TV. That was the moment something snapped inside me.
An annoyed woman in her kitchen | Source: Pexels
Billy wasn’t going to understand—not unless he felt the inconvenience himself. If he wanted me to live like a 19th-century housewife, then fine. He could live like a caveman.
So I planned my revenge.
The next morning, I packed his lunch as usual. Except instead of the big, hearty meal he expected, I filled his lunchbox with stones. Right on top, I placed a folded note.
A lunchbox filled with rocks | Source: Midjourney
Then I kissed his cheek and sent him off to work.
And I waited.
At exactly 12:30 PM, Billy stormed through the front door, red-faced and furious.
“What the hell have you done?!” he shouted, slamming his lunchbox onto the counter.
I turned from the sink, wiping my hands on a towel. “What do you mean, sweetheart?”
A laughing woman in her kitchen | Source: Midjourney
He flipped open the lid, revealing the pile of rocks. He grabbed the note and read it out loud.
“Men used to get food for their families themselves. Go hunt your meal, make fire with stones, and fry it.”
His face twisted in rage. “Are you out of your damn mind, Shirley? I had to open this in front of my coworkers!”
I crossed my arms. “Oh, so public humiliation is bad when it happens to you?”
A shouting man wearing glasses | Source: Pexels
Billy clenched his jaw. He looked like he wanted to yell, but for once, he didn’t have a comeback.
I crossed my arms and tilted my head. “Go on, Billy. Tell me how this is different.”
His jaw tightened. “Shirley, this is—this is just childish.”
I let out a sharp laugh. “Oh, I see. So your suffering is real, but mine is just me being childish?”
An angry woman lecturing her husband | Source: Pexels
He threw his hands in the air. “You could have just talked to me!”
I stepped forward, fire burning in my chest. “Talked to you? I did, Billy. I told you I couldn’t go three weeks without a washing machine. I told you I was exhausted. And you shrugged and told me to do it by hand. Like I was some woman from the 1800s!”
A woman turning away from her husband | Source: Pexels
His nostrils flared, but I could see the tiny flicker of guilt creeping in. He knew I was right.
I pointed at his lunchbox. “You thought I’d just take it, huh? That I’d wash and scrub and break my back while you sat on that couch every night without a care in the world?”
Billy looked away, rubbing the back of his neck.
A sad man clutching his head | Source: Pexels
I shook my head. “I’m not a servant, Billy. And I’m sure as hell not your mother.”
Silence. Then, finally, he muttered, “I get it.”
“Do you?” I asked.
He sighed, shoulders slumping. “Yeah. I do.”
A tired man rubbing his temples | Source: Pexels
I watched him for a long moment, letting his words settle. Then I turned back to the sink. “Good,” I said, rinsing off my hands. “Because I meant it, Billy. If you ever put your mother’s vacation over my basic needs again, you’d better learn how to start a fire with those rocks.”
Billy sulked for the rest of the evening.
An angry man in a hoodie | Source: Pexels
He barely touched his dinner. He didn’t turn on the TV. He sat on the couch, arms crossed, staring at the wall like it had personally betrayed him. Every now and then, he sighed loudly, like I was supposed to feel bad for him.
I didn’t.
For once, he was the one uncomfortable. He was the one who had to sit with the weight of his own choices. And I was perfectly fine letting him stew in it.
A woman reading a book on a couch | Source: Pexels
The next morning, something strange happened.
Billy’s alarm went off earlier than usual. Instead of hitting snooze five times, he actually got up. He got dressed quickly and left without a word.
I didn’t ask where he was going. I just waited.
That evening, when he came home, I heard it before I saw it—the unmistakable sound of a large box being dragged through the doorway.
A large box in the doorway | Source: Midjourney
I turned around and there it was. A brand-new washing machine.
Billy didn’t say anything. He just set it up, plugging in hoses, checking the settings. No complaints. No excuses. Just quiet determination.
When he finished, he finally looked up. His face was sheepish, his voice low.
“I get it now.”
A sorry man covering his face | Source: Pexels
I watched him for a moment, then nodded. “Good.”
He rubbed the back of his neck. “I, uh… should’ve listened to you sooner.”
“Yeah,” I said, crossing my arms. “You should have.”
He swallowed, nodded again, then grabbed his phone and walked away without argument or justification. Just acceptance. And honestly? That was enough.
A satisfied smiling woman | Source: Pexels
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