Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
Sir Elton John, 76, raises his two sons not to be spoiled as they already do chores for some pocket money
David Furnish, Sir Elton John’s spouse, and they have been together for more than 20 years. The couple is also raising their two boys, Zackary and Elijah, to be modest and aware of the worth of money.
Famed artist Sir Elton John has released thirty-two albums to far and shows no signs of slowing down. Even at seventy-three, the vocalist continues to be in high demand.
David Furnish and Sir Elton John in London in 2001 | Photo courtesy of Getty Images
Despite having a successful career for more than thirty years, the musician wants to concentrate on other areas of his life, such as his marriage to David Furnish and his two sons, Zachary and Elijah.
A brief romance blossomed between John and Furnish in 1993, before their lives got consumed with parenting their sons. The singer of “Sacrifice” announced that he had moved back into his Windsor home and was looking to socialize.
John then requested a friend to invite Furnish and other individuals to dinner, saying he felt an immediate connection with Furnish. John admired how well-groomed and reserved he was.
After going on a date the next day, the two’s long-term relationship officially started. After nine years of being in a civil partnership, they made the decision to tie the knot in 2014.
The pair used Instagram to send out invites. The highlight of the day was spending time with their sons, who had the important duty of serving as ring carriers.
Furnish and John found great joy in sharing their partnership with their children, particularly considering the difficult road they had to go to become parents. It all began in 2009 when they were acquainted at an HIV orphanage with a young boy from Ukraine named Lev.
Lev came from a shattered family, so the couple wanted to help him, but the government wouldn’t let it because he was too old. Still, the couple assisted Lev and spoke with him.
John came to the realization that he may be a father after meeting Lev. He acknowledged that he had always believed he was too old to have children. Zachary, their first son, was born in 2010 through a surrogate, and Elijah followed in 2013.
Bringing Up Children Outside of the Media
The couple desired to be actively involved with their children while leading a hectic lifestyle. “We don’t want to entrust housekeepers and nannies with raising our kids,” Furnish stated. The couple decided that having boys was the best course of action, and now their primary objective is to raise their sons in a happy and healthy environment.
John expressed to his sons in a touching letter how much they had altered his life. “You two are the best gifts I have ever received, Zachary and Elijah. In ways I never imagined imaginable, you have given my life meaning and purpose and filled my heart with love,” the singer added.
Furnish and John are content with the lovely family they have created. The love and support their children will always have from their parents is something they do not want them to forget as they grow older.
John talked candidly about how becoming a parent has altered his outlook on life and some of the values he and his spouse want their kids to grow up with.
John talked about how having children affected his attitude toward money. Having two children of his own now, he values his time with Zachary and Elijah more than a popular song or artwork.
The singer acknowledged that because he and Furnish were used to living as the center of attention, they had spent a lot of money before having children. However, John claimed that since their sons arrived, they had drastically cut back on their spending.
The couple’s current concern is ensuring that they own only what they require. Additionally, the couple has been instilling in their kids the importance of money and the labor required to acquire it.
Although John is aware that his kids have a privileged existence already, he still wishes they had humility. The artist has stated that he does not intend to leave them his whole estate as a result. Rather, he aims to strike a balance between providing his kids with a wonderful life and keeping them grounded. He thought to himself:
Naturally, I would like to leave my boys in a very secure financial situation. But giving children a silver spoon is a poor idea. Their lives is ruined by it.
John has attempted to instill in the boys an appreciation for money since they were young children. Zachary and Elijah may not have realized how well-known their parents were at the age of five and three, but John and Furnish did teach them a valuable lesson about budgeting.
The singer said in 2016 that doing chores around the house, such the kitchen or garden, would earn them £3 ($3.74) in pocket money. Each coin would then be divided between savings, spending, and charity. As they grew older, their responsibilities included tidying their rooms, and they received stars for each task completed.
Although the couple is aware that their children would not have a typical childhood, they nevertheless make an effort to give their lives some degree of normalcy. According to John, his children are “not stuck behind the gates of a mansion,” but rather live like locals.
When questioned if he was afraid of having his kids in the spotlight, he replied that he knew there would be drawbacks but that he didn’t mind at all because he thought people were “brilliant” and “not hostile,” especially when they wanted to see pictures of him and his family.
The musician and his spouse would take their kids to the movies or out for pizza because they want them to spend quality time with their family somewhere else than their mansion.
Because of his celebrity, John does not want to miss out on special times with his kids. The musician is also prompt in picking up and dropping off his youngsters at school.
Elton John Flaunts His Offspring
The “Rocket Man” singer posted a unique picture of Furnish, their sons, and their godmother, Lady Gaga, on social media, while John and his spouse typically don’t post any pictures of their sons online. The musician conveyed his love despite expressing his regret at missing the opportunity to picture with them.
On Elton John’s page, leave a remark | Source: Instagram/eltonjohn
Fans expressed disbelief at Zachary and Elijah’s growth in the comment section. “However, the boys are growing quite tall.” Very attractive tiny fellas, a commenter commented. Another admirer exclaimed, “Look at these gorgeous boys and their pappa and Godma!”
John expressed to his sons in a touching letter how much they had altered his life. “You two are the best gifts I have ever received, Zachary and Elijah. In ways I never imagined imaginable, you have given my life meaning and purpose and filled my heart with love,” the singer added.
Furnish and John are content with the lovely family they have created. The love and support their children will always have from their parents is something they do not want them to forget as they grow older.
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