Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
3 Stories of People Who Became Homeless During Hard Times
“We’re going to live inside that house, silly! Right, Dad?” my daughter Kelly chimed in.
As I nodded, the reality of our new life began to sink in. Yet, the moment I opened the doors, something was wrong. The house was in disarray — someone had been there.
“We’ve examined the entire perimeter of the house and found no sign of forced entry, sir,” the officer reported after I called 911.
That evening, I got an anonymous call. In a robotic yet menacing tone, the voice told me I had 24 hours to decline all that Mr. Grives’ left me, leave the house, or else I would lose everything I love.
The mansion came with Mr. Grives’ loyal staff, and one of them warned me that this could be the doing of Mr. Grives’ eldest son, Christopher. I resolved to go to the cops in the morning.
But in the morning, my kids were vanished! Although the clever perpetrator had managed to hide his face from most of the CCTVs in and around the house, there was one he didn’t know about.
Mr. Grives’ staff watched in horror as they recognized the leader of three thugs drugging my children. It was Christopher.
From there on, the cops put everyone on the task of tracking Christopher, and didn’t rest until later that afternoon, when Christopher were spotted on the border of the state with my kids in the back of an old van.
Christopher was arrested, and my children were safe. But their fear had set in deep, and I had a choice to make: to heal and embrace the gift that kind soul left us, or to walk away, rebuilding from the start.
“Daddy, are we going to leave our home again?” Kelly’s question broke my heart.
I wrapped my arms around them. “We’re going to be okay. You want to know why?”
“IBecause the most valuable thing we have is right here, in my arms. So long as we stick together, we’ll always be rich in the most important way: love.”
While Brandon was blessed with children who understand the value of kindness and love, Mr. Greg wasn’t. Coming up next is his story.
3. Mr. Greg: My Teen Daughter Humiliated the Homeless, I Had to Teach Her a Lesson
I always thought I was doing right things for my daughter, Jane. I made sure she had everything she needed, but I missed teaching her something crucial — compassion for others. This hit me hard a few days ago when I lost my wallet.
After a fruitless search, I returned home to find Jane mocking a homeless man and his daughter at our doorstep. The shock set in when the man handed me my wallet, untouched. I was moved by that man’s gesture.
But Jane dismissively called them “trash,” and spoke to them with so much disgust…it broke my heart. I knew I had to fix this.
That evening, I invited the man, Mark, and his daughter for dinner. It was my chance to teach Jane about generosity.
“Dad, check the money! He probably stole it!” Jane said as I checked my wallet. Everything was there.
“All the money is here, sweetie. You’re mistaken,” I told her.
Seeing Mark’s and Lolita’s discomfort, I invited them to stay for dinner.
“Why don’t you guys join us?” I said. “It’s the least I can do to thank you.”
During dinner, Jane gave them paper plates instead of proper dishes.
“Why not use the nice dishes I got you for your birthday?” I suggested.
As we ate, I encouraged Mark to share his story, but Jane kept interrupting with rude comments. Eventually, I lost my patience.
“Shut your mouth, Jane!” I snapped. “You don’t know nothing. Misfortune could strike anyone.”
I then revealed a painful truth to Jane. “It’s my fault. I worked too much, especially after your mother passed. We were the same once,” I confessed. “Do you remember our ‘camping trips’? We were actually homeless.”
Jane was stunned. “How did we get back on our feet?”
“A kind man gave me a job. That changed our lives,” I said with a sigh.
Then, I looked at Mark. “And now, it’s my turn to pay it forward,” I told him.
Mark nodded. “All I did was what a decent human should do,” he said.
“I had no idea, Dad. I’m sorry,” Jane said after a pause.
“It’s okay, honey. It’s not too late to learn from this,” I told her.
When it was time for Mark and Lolita to go, I suggested, “Why don’t you both stay the night? We have plenty of room, and it’s getting late.”
Mark hesitated, then gratefully accepted. “Thank you, Greg. This means a lot.”
But I knew I wasn’t done helping them. Offering them a night’s shelter would not alleviate their problems. So I made a decision.
A little kindness costs nothing, guys, and I was ready to make sure that little Lolita and her dad had a good life.
The next day, I offered Mark a job as a driver and arranged a temporary home for them. “And I’ll help you until you’re back on your feet,” I promised.
“Oh, Really?” Mark gasped. “Nobody is this kind nowadays! I won’t let you down, sir,” Mark told me in tears. “Thank you so much!”
The smile on Lolita’s face that day made me realize I’d done the right thing. As for Jane…my Janie changed. She became a better person, and I’m so glad for that.
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