One of the worse things is cancer, even more so when it’s concerning children.
Jonathan and Shelby thought that their daughter, Sophie, who is two years old, was suffering from allergies. She was finding it hard to breathe and her doctor thought it might be asthma. Unfortunately, it was soon going to be evident that it was much worse!
The little girl, Sophie was set to have an allergy test a few day later, but she didn’t get to take that test.
One night she stopped breathing…
For every parent it’s a worse case scenario, Her parents ran to call an ambulance and within minutes they were on their way to the hospital.
It was just at that moment that doctors finally confirmed that Sophie had a condition that was much worse than just asthma or allergies. She had developed cancer, a T-cell lymphoma.
Sophie has since then spent many months in hospital having chemotherapy, even though fighting it hard the cancer spread.
The treatment affected her ability to talk, walk, use her hands to eat, her tiny body is going through the preparations for a stem cell operation.
Shelby is keeping a constant watch over her daughter and is by her side constantly. So many times Shelby forgets to take care of herself, it’s just the only thought she has, to get Sophie better!
Jonathan and Shelby have created a Facebook page to record Sophie’s fight against the disease, they want friends and family alike to have an easy method to see updates on how Sophie is getting along. The page is called Sophie The Brave.
It’s not just family that follows the page, there are over 12,000 people following Sophie’s fight.
There is one post on the page that has especially been welcomed. Moms with sick children will also relate, very likely, to what Shelby’s said.
Shelby wrote:
“I see you. I sit on this couch all day long and, I see you. You try so hard to be unnoticed by me and my child. I see your face drop a little when she sees you and cries. You try so many ways to ease her fears and win her over. I see you hesitate to stick her or pull bandaids off. You say ‘No owies’ and ‘I’m sorry’ more times in one day than most people say ‘thank you’..”
“I see all of those rubber bracelets on your arms and wrapped around your stethoscope, each one for a child that you’ve cared for and loved. I see you stroke her little bald head and tuck her covers around her tightly. I see you holding the crying mom that got bad news.I see you trying to chart on the computer while holding the baby whose mom can’t-or won’t be at the hospital with her.”
“You put aside what’s happening in your life for 12 hours straight to care for very sick and something’s dying children. You go into each room with a smile no matter what’s happening in there. You see Sophie’s name on the schedule and come to check on us even when she isn’t your patient. You call the doctor, blood bank, and pharmacy as many times as necessary to get my child what she needs in a timely manner. You check on me as often as you check on her. You sit and listen to me ramble for 10 minutes even though your phone is buzzing and your to do list is a mile long.
“I see you. We all see you. No amount of snack baskets or cards can fully express how appreciated you are. You are Jesus to us every single day. Our children wouldn’t get what they need without you. Moms like me wouldn’t feel sane or heard without you. You save our babies and we couldn’t do this without you.”
Shelby got 26,000 likes on her post, its easy to see and understand why, all the amazing people at the hospital, the nurses, all deserve to be thanked and recognized for their great work.
Let’s all hope and pray that Sophie makes a fast recovery, and as it happens the family got some really great news, Sophie’s cancer is almost all gone!
Let’s also share Shelby’s words about the nursery and hospital staff so that more and more people can hear about the amazing work they do.
A Man Who Was Called “The Tree Man” Was Able to Hold His Daughter Again After Many Surgeries
“The Tree Man” is a man whose life has been defined by a rare malformation in his hands. Once dubbed for his distinctive condition, he has undergone numerous surgeries, overcoming tremendous challenges on his journey. Now, with unwavering determination and the skilled hands of medical professionals, he has reclaimed a simple yet profound joy—holding his daughter once again.
Abul Bajandar has a rare condition called ’Tree Man’ Syndrome.
Abul Bajandar, a man hailing from Bangladesh, is afflicted with an extraordinary and rare condition known as ’Tree Man’ Syndrome. This hereditary condition, though non-contagious, is unfortunately incurable, and surgical interventions offer only temporary relief. Abul is not alone in his struggle, as there are others worldwide grappling with the challenges posed by this syndrome.
This syndrome manifests through the development of wart-like skin growths that bear a striking resemblance to tree bark. These growths, while initially small, have the potential to grow significantly in size, resulting in considerable disability for those affected.
He has it from a young age.
The onset of his condition began during adolescence, with small warts appearing on his body at the age of 13-14. Regrettably, as he advanced in age, the affliction rapidly escalated, affecting various parts of his body.
After 16 surgeries he was able to hold his daughter again.
After undergoing a series of 16 surgeries between 2016 and 2017 at Dhaka Medical College Hospital in Dhaka, Bangladesh, Abul Bajandar achieved a poignant milestone—he could once again hold his daughter. The surgical procedures aimed to remove the bark-like lesions from his hands and feet, offering a glimmer of hope in his battle against Tree Man Syndrome.
Bajandar shared the profound joy he experiences spending time with his daughters, emphasizing, “If I recover from this, I want to work again, to build a small business to help my daughters in her studies and to give them a good life.” These words reflect not only his determination to overcome the challenges posed by his rare condition but also his unwavering commitment to providing a better future for his family.
Throughout Abul Bajandar’s challenging journey with Tree Man Syndrome, he draws strength from the unwavering support of his wife and mother. In the face of the condition’s recurrence, their steadfast presence provides him with comfort and encouragement. Bajandar reflects on the transformative power of fatherhood, sharing, “When my daughter was born, she brought me the hope of life again. I didn’t want to leave her as an orphan. I felt like I must live for her.”
Abul Bajandar’s condition returned but he remains hopeful.
Despite facing the disheartening recurrence of his condition, Abul Bajandar maintains a resilient sense of hope. Doctors, initially uncertain about the possibility of the condition’s return, witnessed its reappearance. Undeterred, Bajandar expresses his unwavering optimism, declaring, “My only dream is to recover from this situation and live a healthy life.”
His poignant words reflect not only the personal challenges he endures but also a universal desire for health and well-being. Bajandar’s enduring hope shines through as he states, “All I can say is that I truly believe and hope that a cure exists for this disease.” In the face of adversity, his spirit remains unbroken, embodying the strength of individuals confronting rare and challenging medical conditions.
Another person born with a rare condition has defied societal norms and emerged as a symbol of extraordinary resilience. Meet the girl affectionately referred to as “Voldemort” due to being born without a nose.
Preview photo credit Tansh / Alamy Stock Photo, ZUMA Press, Inc. / Alamy Stock Photo
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