When Emiliana Rodriguez was a little girl, she recalls watching friends play a nighttime soccer match when one of the players abruptly died on the pitch.
Unaware of what had transpired, Rodriguez, a native of Bolivia, developed a phobia of the dark and the “monster”—the silent killer known as Chagas—that she had been told only appears at night.
Chagas disease is a unique sort of illness that is spread by nocturnal insects. It is also known as the “silent and silenced disease” that infects up to 8 million people annually, killing 12,000 people on average.
Emiliana Rodriguez, 42, discovered she had to live with Chagas, a “monster,” after relocating to Barcelona from Bolivia 27 years ago.
“Night is when the fear generally struck. I didn’t always sleep well,” she admitted. “I was worried that I wouldn’t wake up from my sleep.”
Rodriguez had specific tests when she was eight years old and expecting her first child, and the results indicated that she carried the Chagas gene. She recalled the passing of her buddy and remarked, “I was paralyzed with shock and remembered all those stories my relatives told me about people suddenly dying.” “I wondered, ‘What will happen to my baby?’”
Rodriguez was prescribed medicine, though, to prevent the parasite from vertically transmitting to her unborn child. After her daughter was born, she tested negative. Elvira Idalia Hernández Cuevas, 18, was unaware of the Mexican silent killer until her 18-year-old son was diagnosed with Chagas.
Idalia, an eighteen-year-old blood donor from her birthplace near Veracruz, Mexico, had a positive diagnosis for Chagas, a disease caused by triatomine bugs, often known as vampire or kissing bugs and bloodsucking parasites, when her sample was tested.
In an interview with the Guardian, Hernandez stated, “I started to research Chagas on the internet because I had never heard of it.” When I read that it was a silent murderer, I became really afraid. I had no idea where to go or what to do.
She is not alone in this; a lot of people are ignorant of the diseases that these unpleasant bugs can spread. The term Chagas originates from Carlos Ribeiro Justiniano Chagas, a Brazilian physician and researcher who made the discovery of the human case in 1909.
Over the past few decades, reports of the incidence of Chagas disease have been made in Europe, Japan, Australia, Latin America, and North America.
Kissing bugs are mostly found in rural or suburban low-income housing walls, where they are most active at night when humans are asleep. The insect bites an animal or person, then excretes on the skin of the victim. The victim may inadvertently scratch the area and sever the skin, or they may spread the excrement into their mouth or eyes. This is how the T. cruzi infection is disseminated.
The World Health Organization (WHO) estimates that between 6 and 7 million people worldwide—roughly 8 million people in Mexico, Central America, and South America—have Chagas disease; the majority of these individuals remain oblivious to their illness. These estimates are provided by the Centers for Disease Control and Prevention (CDC). The persistent infection might be fatal if untreated. According to the Guardian, Chagas disease kills over 12,000 people year, “more people in Latin America than any other parasite disease, including malaria.”
Despite the fact that these bugs have been found in the United States—nearly 300,000 people are infected—they are not thought to be endemic.
While some people never experience any symptoms, the CDC notes that 20 to 30 percent experience gastrointestinal or heart problems that can cause excruciating pain decades later.
Furthermore, only 10% of cases are detected globally, which makes prevention and treatment exceedingly challenging.
Hernández and her daughter Idalia went to see a number of doctors in search of assistance, but all were also uninformed about Chagas disease and its management. “I was taken aback, terrified, and depressed because I believed my kid was going to pass away. Above all, Hernandez stated, “I was more anxious because I was unable to locate any trustworthy information.”
Idalia finally got the care she required after receiving assistance from a family member who was employed in the medical field.
“The Mexican government claims that the Chagas disease is under control and that not many people are affected, but that is untrue,” Hernández asserts. Medical practitioners misdiagnose Chagas disease for other heart conditions because they lack knowledge in this area. Most people are unaware that there is Chagas in Mexico.
The World Health Organization (WHO) has classified chagas as a neglected tropical disease, which means that the global health policy agenda does not include it.
Chagas is overlooked in part because, according to Colin Forsyth, a research manager at the Drugs for Neglected Diseases Initiative (DNDi), “it’s a silent disease that stays hidden for so long in your body… because of the asymptomatic nature of the initial part of the infection.”
Forsyth went on to say, “The people affected just don’t have the power to influence healthcare policy,” making reference to the impoverished communities. It’s kept hidden by a convergence of social and biological factors.
Chagas, however, is becoming more well recognized as it spreads to other continents and can also be transferred from mother to child during pregnancy or childbirth, as well as through organ and blood transfusions.
The main objective of the Chagas Hub, a UK-based facility founded by Professor David Moore, a doctor at the Hospital for Tropical Diseases in London, is to get “more people tested and treated, and to manage the risk of transmission, which in the UK is from mother to child,” according to Professor Moore.
Regarding the WHO’s 2030 aim for the eradication of the disease, Moore stated that progress toward it is “glacial” and added, “I can’t imagine that we’ll be remotely close by 2030.” That seems improbable.
Two medications that have been available for more than 50 years to treat chagas are benznidazole and nifurtimox, which according to Moore are “toxic, unpleasant, not particularly effective.”
Although the medications are effective in curing babies, there is no guarantee that they will prevent or halt the advancement of the condition in adults.
Regarding severe adverse effects, Rodriguez remembers getting dizziness and nausea as well as breaking out in hives. She completed her therapy, and she gets checked out annually.
Moore goes on to say that while creating stronger anti-Chaga drugs is crucial to stopping the disease’s spread, pharmaceutical companies are currently not financially motivated to do so.
As president of the International Federation of Associations of People Affected by Chagas condition (FINDECHAGAS), Hernández is on a mission to raise awareness of the condition until there is a greater need on the market for innovative treatments.
In Spain, Rodriguez is battling the “monster” as part of a campaign to increase public awareness of Chagas disease being conducted by the Barcelona Institute for Global Health.
“I’m tired of hearing nothing at all,” Rodriguez declares. “I want Chagas to be discussed and made public. I’m in favor of testing and therapy for individuals.
They are being heard, too.
World Chagas Disease Day was instituted by the WHO on April 14, 1909, the day Carlos discovered the disease’s first human case.The WHO states that “a diversified set of 20 diseases and disease categories are set out to be prevented, controlled, eliminated, and eradicated through global targets for 2030 and milestones.” And among them is Chagas.
To prevent a possible infestation, the CDC suggests taking the following steps:
Close up any gaps and fissures around doors, windows, walls, and roofs.
Clear out the rock, wood, and brush piles close to your home.
Put screens on windows and doors, and fix any tears or holes in them.
Close up gaps and crevices that lead to the exterior, crawl areas beneath the home, and the attic.
Keep pets inside, especially during the evening.
Maintain the cleanliness of your home and any outdoor pet resting places, and check for bugs on a regular basis.
If you believe you have discovered a kissing insect, the CDC recommends avoiding crushing it. Alternatively, carefully put the bug in a jar, fill it with rubbing alcohol, and then freeze it. It is then recommended that you bring the bug’s container to an academic lab or your local health authority so that it can be identified.
Please tell this tale to help spread the word about an illness that goes unnoticed!
I Decided to Surprise My Husband at Work Only to Discover He Was on Vacation
I planned to surprise my husband at work with lunch, but instead found out he was on vacation. Confused and suspicious, I followed him the next day and uncovered a shocking secret at my sister’s house. What I found left me questioning everything I thought I knew about my marriage and my family.
I decided to surprise Ben at work with lunch last Tuesday. I’d spent the morning making his favorite — lasagna. With the kids at school, I had some time to myself, and I thought it’d be a sweet gesture. I mean, what husband wouldn’t love a surprise visit from his wife with homemade food, right?
When I arrived at his office, the receptionist gave me a puzzled look.
“You’re here for Ben?” she asked, glancing at the lasagna in my hands.
“Yeah, just wanted to bring him lunch. Is he in?”
She hesitated. “Ben’s been on vacation for the past two weeks.”
I stood there, stunned, trying to process what she’d said. Vacation? He’d told me he was working late all week. My stomach twisted, and I felt a cold sweat break out on my forehead. I thanked her and left.
At home, I tried to make sense of it. Maybe it was a misunderstanding. But what kind of misunderstanding lasts two weeks? I couldn’t shake the feeling that something was terribly wrong. So, I did what any suspicious wife might do — I decided to follow him the next day.
The next morning, I called Mom and asked her to take the kids for the day. I told her I had some errands to run. She was happy to help, oblivious to the turmoil brewing in my head. I then followed Ben to find out what was really going on.
I watched as he left the house and got into his car, and I followed at a safe distance. He drove across town and pulled up to Kate’s house — my sister’s house.
My mouth went dry as I watched him get out of the car. Kate came out, smiling warmly as she embraced him and led him inside.
My mind went blank. Was Ben having an affair with my sister? I couldn’t believe it, but what else could explain it? The pain of betrayal cut deep, and I felt tears welling up. I had to know for sure.
I parked my car a few houses down from Kate’s place and called Carla, my lawyer. She’d handled a few legal matters for us before, and I trusted her judgment. I told her everything, my voice trembling with anger and hurt.
“Julia,” Carla said, her tone calm and professional, “before you jump to conclusions, gather some concrete evidence. It’s important to be sure before taking any legal steps.”
I knew she was right. So, I went back to Kate’s house, lurking around like some sort of spy. I felt ridiculous, but I had to know the truth. I peered through a window, careful not to be seen.
Inside, I saw Ben and Kate sitting at the kitchen table, huddled over lunch, and a pile of papers. They looked serious, and every now and then, they’d glance around, as if worried about being caught.
What were they plotting? The more I watched, the more convinced I became that something was terribly wrong. It wasn’t just an affair — they were planning something.
I snapped a few photos with my phone, my hands shaking. I needed proof, something concrete to confront Ben with. My mind raced with all sorts of terrible scenarios. What were they up to?
I called James from my car. He picked up on the first ring. James, my brother-in-law, had always been the sensible one in the family. Married to Kate for nearly a decade, he was the calm, rational counterpoint to her more impulsive nature.
He and Ben got along well, often bonding over their shared love of sports and grilling. I trusted James, and if anyone could help me make sense of this, it was him.
“James, it’s Julia. I need to talk to you about Ben and Kate.”
There was a pause. “Julia, calm down. What’s going on?”
“I think they’re having an affair,” I blurted out, my voice shaking.
James sighed. “Julia, you need to come over here. Now.”
I hurried back to Kate’s house, my mind spinning with fear and betrayal. When I arrived, I saw James’ car already parked outside. I crept up to the house and peeked through the window again. James was there, sitting with Ben and Kate at the kitchen table.
I could hear snippets of their conversation through the half-open window.
“Julia called me,” James said, sounding concerned. “She’s worried sick, thinks you two are having an affair.”
Ben nodded. “So, she is unaware of everything.”
“That’s great!” Kate replied, her tone filled with excitement.
“Our plan is working,” Ben added.
My heart shattered. I had heard enough. I barged into the house, my anger boiling over.
“You lying, cheating traitors! How could you do this to me?”
Kate and Ben looked at me, stunned. James stood up, trying to calm me down.
“Julia, please, let us explain.”
“Explain what? That my husband is cheating on me with my sister?” I screamed, tears streaming down my face.
“Julia, it’s not what you think,” Ben said softly, trying to calm me down. “I took a vacation to work on a surprise for you.”
I laughed bitterly. “A surprise? Meeting at Kate’s house every day is a surprise?”
“Yes,” Ben said, his voice steady. “I was planning to make your dream come true. You always talked about owning a coffee shop, right?”
I blinked, not understanding. “What?”
Kate stepped forward, holding a stack of papers. “Ben has been using his inheritance to buy a coffee shop for you. We’ve been working on the business plan and all the legal paperwork here.”
My anger started to wane, replaced by confusion and a glimmer of hope. “A coffee shop? For me?”
Ben nodded, pulling out a folder and handing it to me. “Look, these are the documents. The lease, the renovation plans, everything. I wanted it to be perfect before I told you. James and Kate are co-investors, so I wanted to make sure they are completely onboard.”
I looked at the papers, the words blurring through my tears. It was all there. The proof of his love and dedication, the coffee shop I had always dreamed of. My knees buckled, and Ben caught me before I fell.
“Oh my goodness, Ben… I’m so sorry. I thought… I thought you were…”
“I know,” he said, hugging me tightly. “I should have told you, but I wanted it to be a surprise. I wanted to see your face when I handed you the keys.”
“I’m such an idiot,” I sobbed into his chest. “I’m so sorry.”
“Shh, it’s okay. I understand why you felt that way. But Julia, I love you. I would never betray you.”
I nodded, feeling the weight of my mistake. “Thank you, Ben. Thank you for everything.”
The next day, we went to sign the final papers. The coffee shop was ours. I could hardly believe it. As I walked into the quaint little space, the smell of freshly baked goods already filling the air, I felt so joyful.
Ben squeezed my hand. “This is all for you, babe. I believe in you.”
I smiled, tears of happiness streaming down my face. “I love you, love. Thank you for believing in me.”
We worked together, turning the coffee shop into something magical. It became a place where dreams were baked into reality, where love and trust were the secret ingredients in every recipe.
Looking back, I realized how important trust and communication are in a relationship. Misunderstandings can happen, but it’s how we handle them that truly matters.
As I stood in my coffee shop, surrounded by the aroma of freshly baked goods, I felt grateful for Ben’s unwavering love and support. We had faced a storm, and together, we had come out stronger.
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